This is the amazing story of our micro preemie, John Craig. He was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him!
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Wednesday, April 25, 2007

Feeding clinic

John and I headed over to PCH bright and early this morning to attend our 3 hour feeding clinic. We met with an OT, ST, GI, Nutritionist, and Pulmonologist. It went really well.

The ST wants us to do another barium swallow study.......remember last time we went John wasn't taking anything by mouth so we weren't able to do it. She feels that he is taking enough water by spoon now for it to work this time. She hopes to get us in, in the next few weeks. She also wants us to be more aggressive with his feeding..........hmmmmm, not quite sure what she wants us to do.......hog tie him and force his mouth open?

The GI wants us to gradually work his Peptamen Jr. calories up to 30 (his old formula + oatmeal = 27 calories.) He is currently at 24 calories and unfortunately he has lost weight for the first time in almost a year:( He weighed in at 21 pounds 9 ounces! We will have another weight check in 2 weeks....so stay tuned!

The Pulmonologist and I just chatted for awhile........he really didn't need to see John however, he is part of the clinic. Anyhow, he said his lungs were perfect, ears looked great (we just finished our antibiotics on Sunday) but his sinuses were a little swollen.........he said it looks like allergies. So, 12 days after we stopped taking one of our meds. (Enulose) we are adding another (Singular.) The never ending saga of a micro preemie:)

And, on another note, the hospital called today to re-schedule his synagis shots.........they canceled last week because they said they weren't going to give an April dose because RSV season was over. They must have changed their mind. Oh well, it just gives the little man some extra protection from all the yucky germs out there.


Time to invest in some baby gates! John has decided to venture out of the play area.

6 comments:

Anonymous said...

Mommy, now the fun begins-where is John hiding? What little corner can he find,behind what chair? Enjoy!
Aunt Jean

Jamie and Jill said...

Aunt Jean......I can't wait for that!!!!!!

abby said...

I love the shot of John heading down the hall...it's so cool that he's mobile.

The feeding stuff is unfortunately familiar. Hallie does take her bottle, and we are thankful for that, but it's a real struggle to get her to suck on it, and most of the time she purses her lips and refuses to eat her solids when we offer them. Her stomach might be growling, but she still won't eat. She's still gaining somehow (could be the 30 calorie formula and our successful sleep-feeding) but who knows for how long. Anyway, g-tube aside, this is all so familiar and I wish that they could figure out some trick to transform our kids into good eaters.

Anyway, we loved your video and can't wait for our own walk this sunday.

Shannon said...

I am glad to hear that things went well for the feeding clinic.

And I just wanted to say that I loved the video you put together...he is just too cute!

Anonymous said...

OMG that is the cutest picture!
Thank God for the update about the clinic. I have called you twice to ask about it, and forget until I hang up. Good grief.....
Grammy

Anonymous said...

Wow I didn't realize he was crawling, goooo John...( now if Kellar will just follow..haha..) Hopefully the swallow study will tell ya'll a little bit more of whats going on, on the plus side he IS now taking something by mouth, he'll get it...