Sunday, April 29, 2007
Saturday, April 28, 2007
Friday, April 27, 2007
John has quite the schedule these days..........
Monday: PT ( 2x a week starting next month)
Friday: OT and ST
Wow.....I can't even imagine what it's going to be like when we add soccer and t-ball practice into the mix:) Thank goodness I don't have to work full time.......wait a minute being a Mommy IS full time.....and then some overtime!!!!
So, Wednesdays are our free days...........and we can't wait to set up some play dates!!!!
It's the simple things in life that make John smile!
Wednesday, April 25, 2007
The ST wants us to do another barium swallow study.......remember last time we went John wasn't taking anything by mouth so we weren't able to do it. She feels that he is taking enough water by spoon now for it to work this time. She hopes to get us in, in the next few weeks. She also wants us to be more aggressive with his feeding..........hmmmmm, not quite sure what she wants us to do.......hog tie him and force his mouth open?
The GI wants us to gradually work his Peptamen Jr. calories up to 30 (his old formula + oatmeal = 27 calories.) He is currently at 24 calories and unfortunately he has lost weight for the first time in almost a year:( He weighed in at 21 pounds 9 ounces! We will have another weight check in 2 weeks....so stay tuned!
The Pulmonologist and I just chatted for awhile........he really didn't need to see John however, he is part of the clinic. Anyhow, he said his lungs were perfect, ears looked great (we just finished our antibiotics on Sunday) but his sinuses were a little swollen.........he said it looks like allergies. So, 12 days after we stopped taking one of our meds. (Enulose) we are adding another (Singular.) The never ending saga of a micro preemie:)
And, on another note, the hospital called today to re-schedule his synagis shots.........they canceled last week because they said they weren't going to give an April dose because RSV season was over. They must have changed their mind. Oh well, it just gives the little man some extra protection from all the yucky germs out there.
Time to invest in some baby gates! John has decided to venture out of the play area.
Sunday, April 22, 2007
We had so much fun on Saturday at the walk. I was a little nervous when I woke up and it was pouring rain outside........but hey, a little rain doesn't hurt anyone! We had a few sprinkles at the beginning of the walk but by the time we crossed the finish line the sun was shinning.
Team John was unbelievable..........it brought tears to my eyes to see all of our family and friends out there walking with us, supporting a cause that is so VERY important to us. It was cold, it was wet, it was early...but everyone was there!!! I thank God every night for blessing us with the most supportive and loving family and friends. We'd be lost without them!
John did awesome at the walk.........he slept the entire 4 miles! Just as we crossed the finish line he woke up and was ready to party!!!!
All in all, it was an AMAZING day. Everyone is already pumped up for next years walk.....and we are setting the bar even higher!
Wednesday, April 18, 2007
As thankful as I was for John to be in a germ free home...............I missed him like crazy. I must have called 10 times or so just to see how he was doing........of course he was doing wonderful and having a great time with Grams, who plays with him non-stop..............Grandparents are the best! So, after disinfecting the entire house today we went to pick him up.........we couldn't get there quick enough.
So, we are all back at home and feeling better..........for the most part. John seems to be feeling good...........minus the molar that just popped through and the other one that is making it's way through.......10 teeth, 20 more to go!
Now, we just need to rest up for the big walk on Saturday. Team John is awesome.........we have met yet another goal and I am tempted to raise it once again..........what do you think? Can we hit $6,000 by Saturday?
Sunday, April 15, 2007
And, 3 red heart balloons (also with a name on each) in Memory of:
All 8 of these babies were born at Good Sam (between the end of Nov 05 and the beginning of Jan 06)............and all of them were born at only 24 weeks gestation. They are true miracles!
Our Team John shirts!!!!
A big thank you goes out to our good friends Joe & Shelly for making our Team John shirts. If you ever need any group or individual shirts made............here's the place to go!
Saturday, April 14, 2007
Thursday, April 12, 2007
1.You use strange initials (C-PAP, CCs, NICU, NG) when discussing your child.
2.You actually remember how many CCs make up an ounce.
3.You count his weight in grams.
4. The skin on your hands is peeling from washing so often!
5.You hesitate when someone asks his age, but you know exactly how much he weighs!
6. The answer to "How old is your baby?" is a story 30 minutes long!
7. When someone asks his birthday, you reply, "Which one?" or "he's not supposed to be born yet."
8. You start to understand some of the things they say on ER!
9. You turn into Kung-Fu Mom when someone tries to touch your baby.
10. You cry at Maternity Ward and get mad at Baby Story.
11. You see a 7lb newborn and say "Wow! He's so BIG!"
12. Your baby is months old before he can even come home.
13. When someone says how tiny your baby is, you argue that he is huge -- and to demonstrate, you whip out pictures of him in NICU.
14. You do a health check on people when they come to visit .
15. You make people wash their hands before going near your child.
16. You want to scream when someone says that she just wants to have this baby now - at week 28, 32, or 34 weeks.
17. You never take your child for granted.
18. You worry about RSV season and it is still weeks away . . .
19. You know what "RSV" stands for.
20. You pick up 2 pounds of ground beef and think that your baby was born smaller than it.
21. You buy "Purell" in bulk.
22. You can stare at your baby for hours when he sleeps
23. NICU nurses are your best friends.
24. You no longer blink when an alarm goes off....
Wednesday, April 11, 2007
Our little guy has definitely caught something fierce...........please pray that it is not strep throat! I think it is just a cold but just a cold can hit a preemie pretty hard. Even though John didn't have any lung disease I am feeling a little on edge because whatever he has is in his lungs and he is coughing up a storm (which of course makes him vomit.) Thankfully we can keep him hydrated through his G-tube. So, we may be visiting the pedi tomorrow.....we'll see how tonight goes!
We've got to get him healthy.........the big day (WalkAmerica) is the following weekend. Speaking of WalkAmerica..........Team John is kicking some serious butt. We have now raised $4675 plus $700 (California team.) Thank you to everyone for supporting and donating to MOD! We will be walking in honor of John, Cole & Paige (24 week surviving triplets,) Sammie (24 weeker & John's NICU girlfriend,) and Carter (24 week surviving triplet & John's first friend) and in memory of Kaylee (sister to Cole & Paige,) and Carson & Carly (brother and sister to Carter.)
Here are a few pictures from breakfast this morning..........cough, snot, and yet still smiling! He's the greatest kid in the world!!!
Tuesday, April 10, 2007
Well, I think we over did our public appearances because the little guy has come down with a cold. No worries though............he needs to get these little colds in order to build up his immune system. So, if you live in AZ you'll still see us out and about because remember..........RSV season is over!!!! I did however have to cancel the swallow rehab for tomorrow...........there is no point in taking him if he feels crummy.
Monday, April 09, 2007
WOW.....I must have been a very good boy (hmmmm, do you even have to be a good boy or does the Easter bunny come automatically?)
Daddy swears John told the Easter bunny he wanted a football:)
Daddy, I see an egg!!!
Mommy, I LOVE Easter!
Saturday, April 07, 2007
John playing with his new (early) Easter toy......thank you Mr. Easter Bunny!
Yes, I am teething! I promise I don't usually drool!
Monday, April 02, 2007
Anyhow, our GI appointment went well. We are going to transition him to Peptamen Junior..........what a big boy! And, are you ready for the weight check.................22.08 pounds!!!!
3:30pm Update: I am definitely getting more adventurous! John did not want to take a nap (I left him in his crib for almost 2 hours and all he did was play and roll around, getting all tangled up in his feeding extension) so, the 2 of us headed out for a little spring shopping..........Daddy may make me go back to work full time if I keep this up:) Anyhow, John scored big time............he got another pair of swim trunks, 2 pairs of pj's, 2 onesies, and a pair of overalls! Again, I was armed with purrell and wet wipes in case of an emergency:)
I also wanted to mention (in case you didn't get the e-mail) that I am putting the order in for Team John T-shirts (adults & kids) tomorrow. If you are walking with us and want a shirt,(and haven't already told me) e-mail me your size!
And, an update on Team John............we are now at $3525!!! I have upped our goal 3 times now!
Sunday, April 01, 2007
Daddy, a hotdog and beer sure sounds good!
Hit a homer Hairston!
Who is this big furry man?
Grandpa's so funny........he told me to get a picture with John and Wilbur. I was thinking, why would Wilbur (UofA mascot) be at a D-backs game and more importantly, why in the world would I want John's picture taken with him........I am an ASU grad! In Grandpa's defense, they do look alike:)
Daddy, can I be a baseball player when I grow up?
- Creep (PT said that's the correct term for crawling on all 4's) across the room to a desired toy. His PT also stated that she is certain this will be met in less than a month.........yahoo!
- Pull to stand
- Go from a crawling to sitting position
- Take 5-10 steps with assistance
Please keep these new goals in your prayers for our little man!
Tomorrow we have a GI appointment so check back to see how much the big guy weighs!