This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Friday, August 02, 2013

Bye Bye Button

Seven years ago this month (five months after we brought our boy home from the NICU with an NG tube) we elected to have a G-tube surgically placed in John's stomach because our son would not eat....and we knew this was best for him.  We also knew that with the severity of his brain bleed he may never get his tube removed and the chances of him eating by mouth were slim.

Fast forward to yesterday....when John got his button removed!!!!!!

We could not be more proud of his drive, determination and positive attitude.  It wasn't easy but he NEVER GAVE UP.  He continues to amaze us daily and reminds us that anything is possible.

We are blessed beyond measure!








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Friday, July 26, 2013

Daddy's Day

I know this is super late but when the kids look back at this blog, I wanted them to see the breakfast in bed they made him:)

We sure LOVE Daddy!!!!!!



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Monday, July 22, 2013

Vacation Wrap Up

The rest of our vacation was spent at the beach with two of our favorite families........The Maes' and The Nachreiner's!!!!!














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Friday, July 19, 2013

Breaking News!

We interrupt these vacation posts with some breaking news!!!

Just in...

JOHNBOY IS GETTING HIS MIC-KEY BUTTON REMOVED ON AUGUST 1ST........EXACTLY SEVEN YEARS AFTER HIS SURGERY TO GET IT!!!!!

As most of you know, over the past seven years we've had a love/hate relationship with his feeding pump....

  We've spent many sleepless nights checking on him because he'd roll around and get tangled in his tubing (around his neck too.) We've cut holes in countless pairs of PJ's to run the tubing out near his feet. We've had NUMEROUS feeding mishaps including feeds on the walls, ceiling and all over everyone in his path:) We've taken his pump and entire suitcase of feeding supplies to every outing and on every vacation we've ever gone on.  We've spent hours upon hours in feeding therapy, BUT we knew it was just a matter of time before he'd overcome this obstacle (even though at times we thought we'd send him to college with his feeding tube.....hoping he wouldn't put beer in. HAHAHA!) 

We couldn't be more proud of him and are soooooooo excited to cross off the LAST thing on our list we were told he'd never do.  

From John's mouth...."You can do ANYTHING if you try, try, try."

Sooooooooo proud to be his Momma. 













Anyone and everyone is invited to our, "Peace Out" pump party.  Of course Johnboy will be picking the menu for this joyous celebration.


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Wednesday, July 03, 2013

Legoland - Vaca Day 2

Legoland is by far our new favorite amusement park.  It was a first for all of us and definitely not the last.  

The kids loved it and had soooooo much fun.  I think Flat Stanley enjoyed himself too:)






















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