This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Sunday, July 23, 2006

Weekend Update

John must be going through a growing spurt because he did a lot of sleeping this weekend. Friday night he slept from 7:00pm-10:00am. Don't worry we aren't starving our child. He gets a continuous feed through his feeding tube at night. Speaking of which we are hoping to get that out soon. I think we are going to go the G-tube route because he is getting an oral aversion from the discomfort of the tube down his throat. Can you blame him? The tube causes him to have severe reflux. Anytime you move him the tube tickles his throat and makes him cough and gag and then of course throw up. For those of you who don't know what a G-tube is, it's a tube that is surgically placed in his stomach and we can give him all of his nutrients through it. He has a barium swallow study on Aug.7 so we'll know more after that. The only down side is that he'll have to go under for it and there are always risks with any surgery.

John almost got to go to his first D-back game this weekend. Our good friends, the Renneckars, have been so generous with their season tickets. They have the best seats in the house. They are literally on the field. The only thing blocking you from the on deck hitter is the fence. Of course you all know that we aren't supposed to take him anywhere but my thinking was, we aren't sitting close to anyone so he'd be OK. We could just cover him up when we were in the elevator and everything would be fine. Then I starting thinking, we've never taken him anywhere in public. What if he starts crying? What if he needs his diaper changed? What if it was too loud? What if someone touches him.....well, that ones simple, Jamie would be forced to knock them out. Then my paranoia really set in and I starting thinking about all the germs and realized it wasn't such a great idea. So, Jamie and Kurt went and John and I watched the game on TV. I watched, John slept! We'll take him next season.

I better try to get some sleep. John is just like his Dad. He can't sit still for more than a few minutes and he won't take a nap. Needless to say, my days are very busy.

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