Neuro/Developmental Eval.

John had a neurological screening last week and he passed with flying colors! They were VERY pleased with his development. They said he is not the same baby as his charts suggest. They said with a severe cerebellum bleed like his you typically see signs by now but he isn't showing anything. He is only a little bit delayed with gross motor skills and has low muscle tone in his neck and hips. His adjusted age is 16 weeks(at the time of the screening)and here is what he scored:
Adaptive: 15 weeks, age appropriate
Gross Motor: 12 weeks, delayed
Fine Motor: 16 weeks, age appropriate
Speech & Lang. 20 weeks, age appropriate
Personal Social 18 weeks, age appropriate
Four out of five, not bad! This by all means does not predict his future but it is a good sign. Time will tell. No matter what, we are so proud of him and will love him just the same. The Dr. also told us that they are following a handful of kids to figure out why some kids with severe brain bleeds end up with extensive disabilities and others show very few signs. They may add John to the group because he is doing so well.

We had a pretty uneventful week. His only appointments were Speech and PT. We like these kinds of weeks. Next week we see the GI doctor and will hopefully schedule his G-tube surgery. We just want to get it over and done with. He'll also be weighed then so we'll let you know. My guess is 12 lbs 10 oz and Jamie thinks he'll be 12 lbs 8 oz. We'll see.

Please feel free to leave comments on this site. Eventually we will print this entire blog out for John to have. I am sure he'll love seeing all the people that were rooting for him.