This is the amazing story of our micro preemie, John Craig. He was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him!
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Friday, July 28, 2006

Neuro/Developmental Eval.

John had a neurological screening last week and he passed with flying colors! They were VERY pleased with his development. They said he is not the same baby as his charts suggest. They said with a severe cerebellum bleed like his you typically see signs by now but he isn't showing anything. He is only a little bit delayed with gross motor skills and has low muscle tone in his neck and hips. His adjusted age is 16 weeks(at the time of the screening)and here is what he scored:
Adaptive: 15 weeks, age appropriate
Gross Motor: 12 weeks, delayed
Fine Motor: 16 weeks, age appropriate
Speech & Lang. 20 weeks, age appropriate
Personal Social 18 weeks, age appropriate
Four out of five, not bad! This by all means does not predict his future but it is a good sign. Time will tell. No matter what, we are so proud of him and will love him just the same. The Dr. also told us that they are following a handful of kids to figure out why some kids with severe brain bleeds end up with extensive disabilities and others show very few signs. They may add John to the group because he is doing so well.

We had a pretty uneventful week. His only appointments were Speech and PT. We like these kinds of weeks. Next week we see the GI doctor and will hopefully schedule his G-tube surgery. We just want to get it over and done with. He'll also be weighed then so we'll let you know. My guess is 12 lbs 10 oz and Jamie thinks he'll be 12 lbs 8 oz. We'll see.

Please feel free to leave comments on this site. Eventually we will print this entire blog out for John to have. I am sure he'll love seeing all the people that were rooting for him.

2 comments:

JP said...

Hey Jill, this is Halle's mom from the preemiemom group on yahoo. I'm glad you decided to start blogging with us! You post caught my attention b/c it was just over a year ago this month that Halle started completely refusing the bottle. We used an NG tube from July until September, and then we went for the g-tube. It was one of the best decisions ever (though there are drawbacks too). I hope all goes well with John's impending surgery!

Jill said...

Thanks! I have been following Halle's blog and she is adorable. She has come a long way. I am so happy for you. I am sure I'll have questions for you when the surgery gets closer.