Tuesday 12/21/21

Good Evening everyone

Apologies for the lateness but just walked in the door.

FIRST... WHAT A NETWORK OF AMAZING HUMANS WE HAVE... organizing, praying, reaching out, just being an all around amazing team. A personal thank you to all of you and your families.

Trina set up a prayer chain. Of course this amazing network filled it up pretty darn quick. She did go ahead and add in additional spots for those of you who wish to sign up and leave a message to the family. The link is:https://m.signupgenius.com/#!/showSignUp/20f084fa9aa29a31-prayers

Thank you to those who could cheer her up today at the hospital to prepare for her surgery tomorrow. For those of you who could not make the trip, we know you were there in sprit. There will be many times over the next few months for us to gather and lift each other up

NOW FOR THE MOST IMPORTANT... HOPE UPDATE!

AMAZING NEWS!

From Jamie: 

The family saw the oncologist and she just received word back from pathology that the tumor is pilocytic astrocytoma grade 1 … which if you’re going to have a tumor this is the one you want to have.  They likely won’t be as aggressive to remove all of it because of the type of tumor and the risk associated with removing all of it. If they’re not able to remove all of it they have a bunch of options later to take care of the rest of it.

WOOOOOOO!!!!!

Basically this type of tumor is typically benign and grade 1 means it is less likely to grow, grow fast, spread. Best news of the worst kind of news. While removing the mass should hopefully end the restriction of spinal fluid and the cancer risk, it will be a bit of time before Hope is 100% and back to participating in school and soccer. There is a chance she may make it home for Christmas but not likely. Knowing Hope she will push to be released ASAP. The spinal fluid will need to begin to circulate properly and the usual down time after any surgery will apply.. Doctors believe she will be able, in time to participate in all activities (except boxing and tackle football per Jamie ha!). Recovery time is yet to be determined and I am sure your support along the way will help!

The surgery will begin, as of a few hours ago, later in the day so she can have a CT before they begin. Again, they still believe it is an 8 hour surgery. Anyone who has had a loved one undergo surgery knows this can change slightly. As we have information tomorrow, I will send it immediately. 

Dr Shafron is ready!!!

As always, feel free to reach out at any time. Thinking about all of you and your families. 

WE HAVE HOPE

Thank you again 

Coach