This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Tuesday, December 21, 2021

Sunday 12/19/21

Good Morning Team:

I will do my best to keep everyone updated. 

As of now pathology is not back yet but should be back tomorrow evening. This should help determine the next step. Surgery to remove the mass is the plan. From what the team of doctors can see, the mass is in a place that is operable. Regardless of the pathology results it will need to be removed to prevent further constrictions on the flow of spinal fluid. As you know the restriction caused her brain to swell. When they biopsied the mass they also put in drains to slowly reduce the fluid causing swelling. The drains are designed to slowly remove fluid so as to not cause anything to go out of balance. This means she is supposed to stay in bed ... granted Hope already asked the docs if she can just stand up and make the fluid drain fast so she can go home (should we expect anything less from her???) Surgery went well. Hope did wake up and they did remove the breathing tube. UMMM the team must be rubbing off on her since Jill and Jamie said she talked a bunch (yes our quiet Hope evidently turned chatty!)  As things stand, the surgery could be Christmas Eve. Again, a waiting game and as you know, things can change.

Brookie (from the 2010 team and Hope's best friend) along with her parents (The Wise Family) arranged for her neighborhood friends to make signs and bring them to the hospital. Her window looks out over the Christmas tree lit up in front of the main entrance. We were able to stand a bit back and wave, facetime, shine lights and cheer her on. Again no visitors are allowed but she did manage to get up and wave back for a bit. 

Please continue to pray and remember WE HAVE HOPE!

Coach

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