This is the amazing story of our micro preemie, John Craig. He was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him!
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Tuesday, February 22, 2011

Lets Do This

This is probably the eighth or ninth time I have tried writing this post.  I think it's because I'm having a hard time expressing the flood of emotions (nervous, scared, anxious, excited) I am feeling the night before my baby boy goes in for a five hour surgery.

As mentioned in previous posts, we have been researching a surgery for John that has the potential of being life changing.  After two years of research and selecting a top neurosurgeon (that we have 110% confidence in) we have made the decision to move forward.

John will undergo a Selective Dorsal Rhizotomy (SDR) tomorrow morning at 8:30am.  This surgery requires the opening of his spinal column.  The neurosurgeon along with his PT will manually test each nerve root severing the ones that are clogged.  It will immediately and permanently release all of his spasticity in his legs due to cerebral palsy.  Therefore, improving such motor functions as, walking, standing and even speech.  

As we journey into the days and months ahead, please keep John in your prayers.  We have a long road ahead of us but giving up has never been an option.

And none of this would be possible without the help of our family and friends.  Thanks to my amazing mom and wonderful mother-n-law (and Dad, brother and sweet little niece, Paige and friends) who will be taking great care of my little Hopie (and spoiling her rotten I'm sure) while we are at the hospital helping John recover.

This picture was taken tonight.  John said to Grams, "This is the best sleepover ever!  I'm going to give you 100 kisses."

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M2Amos said...

Oh, Jill this brought tears to my eyes. John is such a trooper. Praying for you all and for a successful surgery and speedy recovery for sweet John.

Justine said...

Praying for John and you guys as well! This is all so exciting even though it's scary.

JaBLes Mommy said...

What an incredible opportunity. John will continue to amaze us all! We will be praying for John and all of you in the months ahead. If you need anything....just say the word. Love you all!! xoxo