Day three post op has been good. He is feeling more and more like himself every day. The incision on his spine is still pretty tender (and will be for about a month) but his legs seem to be feeling MUCH better....he doesn't mind you touching them which I'm assuming means the tingling sensation is gone.
And every time you ask him how he's doing he replies, "Good!" No matter how uncomfortable he is.
And every time you ask him how he's doing he replies, "Good!" No matter how uncomfortable he is.
He's my hero and gives me more strength than I ever knew possible.
PT came in this afternoon....got his AFO's and shoes on, got him up on his feet and tried helping him walk. It was very hard to watch.....his legs are completely jello. He cannot hold himself up at all. But he was happy as could be and didn't complain once (even though I could tell by his facial expressions that he was uncomfortable.)
During his brief PT session he kept trying to get his games off the table he was standing at so I told him as soon as he was done working with Kelsy (the PT) and she had left, he could play his games. About two minutes later he looks at her and says, "Can you leave now please?"
We've got an intense six months of therapy ahead of us but this little determined boy will be proving those doctors wrong again in no time!!!!
Keeping himself entertained with new books on the iPad.
Thanks Aunt Sharon for the gift card!
And new books on the iPhone.
Spoiled? No! He deserves all of this and more!
He told the nurse last night that he needed to check his heart too. John then proceeds to tell him, "Now take deep breaths like this".....and then demonstrates how to do it.
Love, love, love him!
Poor guy was still having a tough time keeping his O2 saturations up last night.
He's been much better today though and hasn't needed any oxygen at all......not even during his nap.
Sissy soooooooooo excited to see her brother. She misses him so incredibly much.
Checking everything out.
A little jealous I think that brother has a big flat screen in his room......and gets to watch cartoons in bed!
Ahhhhh! Clean sheets and his own PJ's. Much better!
8 comments:
My heart is just bursting with joy at reading about how John is dealing with his newest challenge. Such a fighter he is,such a champion he is and what an incrediable inspiration he is all of us.
Love to our little man and the rest of his wonderful family
Aunt Holly
I am with you! Love, love, love this kid! He is amazing. Sissy Hope is also amazing, and we are impressed by both.
John will be recovering soon, and an inspiration to all.
What an awesome family.
xoxoxoxoxo
Grammy
I am so glad to see that he is doing well and I love seeing pictures of that smiling face!
I think it is hilarious that he asked PT to leave so he could play with his game!
He's so smart & cute and cuddly. Just love that little man. And sisssy too...could she be any cuter in that cheer outfit??
I love seeing his smiling face! He is truly a brave little boy, who gives us all hope :-) Speaking of Hope, cannot believe how big she is! Still sending my prayers your way!!!!!
Tell John that Mrs. B said he can go into the treasure box again when he is feeling up to it!!!! He loves my treasure box....... sending prayers to you and the family. Jill, you give us all strength! <3 Mrs. B
So glad that he's feeling a bit better! Be sure to let him know how many people admire him. He's such a tough kid!
what a journey you have all been on...nothing is harder then watching your child go thorugh something like this but what a trooper he is! All smiles! Kids handle these things with such awe and patience it amazes me. We will keep you all in our prayers.
Lori
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