This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Monday, June 23, 2008

No New AFO's

Monday morning Jamie, John and I (and a bag full of toys) headed west (tee hee...it's only a half hour away) to have John casted for his new AFO's. However, we didn't have much luck. John screamed his head off and would not sit still....the little bugger is strong:) They attempted to cast his leg twice but neither cast turned out:( I am pretty certain this fear stems back to last weeks Botox injections....but, I am not quite sure what we do now since his current AFO's are way to small. Any advice?

On another note....my BIG boy now weighs 27 pounds!!!!!!!!!!

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2 comments:

Anonymous said...

I don't think that I've ever left a comment before but I've been reading your blog for a long time and think John is just adorable. There are so many similarities between he and my daughter Natalie who was born at 23w5days. She also has damage to her cerebellum and has been diagnosed with CP but is doing so well! I don't have any suggestions for you on the AFO casting but wanted to comment because we just took Natalie last week to be casted for her first AFOs. She did great until they turned on the saw to cut them off and she got scared.
If you want to check out our blog, it is www.delhall.com.

twin power mommy ♥ said...

Poor little guy.
Caitlyn never really had a hard time with the casting.
When she had surgery years ago, she was nervous with the actual cast that was put on, but we talked alot about the process of taking it off once it was time. i don't know what you might be able to do for your little man. Perhaps try lollipops!