This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Friday, July 19, 2013

Breaking News!

We interrupt these vacation posts with some breaking news!!!

Just in...

JOHNBOY IS GETTING HIS MIC-KEY BUTTON REMOVED ON AUGUST 1ST........EXACTLY SEVEN YEARS AFTER HIS SURGERY TO GET IT!!!!!

As most of you know, over the past seven years we've had a love/hate relationship with his feeding pump....

  We've spent many sleepless nights checking on him because he'd roll around and get tangled in his tubing (around his neck too.) We've cut holes in countless pairs of PJ's to run the tubing out near his feet. We've had NUMEROUS feeding mishaps including feeds on the walls, ceiling and all over everyone in his path:) We've taken his pump and entire suitcase of feeding supplies to every outing and on every vacation we've ever gone on.  We've spent hours upon hours in feeding therapy, BUT we knew it was just a matter of time before he'd overcome this obstacle (even though at times we thought we'd send him to college with his feeding tube.....hoping he wouldn't put beer in. HAHAHA!) 

We couldn't be more proud of him and are soooooooo excited to cross off the LAST thing on our list we were told he'd never do.  

From John's mouth...."You can do ANYTHING if you try, try, try."

Sooooooooo proud to be his Momma. 













Anyone and everyone is invited to our, "Peace Out" pump party.  Of course Johnboy will be picking the menu for this joyous celebration.


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4 comments:

JaBLes Mommy said...

Best news ever! So happy and so super proud of this and EVERYTHING John has done and will continue to do. He is an inspiration!!! xoxo

elyse2hope said...

Oh man! Congrats. Hard work pays off. Way to persevere. Wish I could be there to celebrate. I'll do my own jig for you out in Cali.

Anonymous said...

A former tube mama to a soon to be former tube mama - I'm so happy for all of you! I know how ELATED and happy you must feel. My daughter's tube was surgically closed a year ago last year and it was a DREAM come true. She had it for 7 years!! It's been a long journey. Only a tube mama knows and understands this! It's an incredible feeling to be finally be rid of all this stuff!! If you want to donate all your stuff, please google Oley foundation. Congrats!! Beth

Anonymous said...

So tomorrow is the big day for John. Another incredible milestone for him. Will be praying that all goes smooth for him.
Love you all,
Holly