This is the amazing journey of our two miracles. John Craig was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him! Hope Amanda, our perfect little girl, is currently recovering from two brain surgeries to remove a 6cm mass from the center of her brain. Hope represents everything good in this world and she too is an inspiration to all.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.
Jeremiah 29.11

Tuesday, March 01, 2022

More tests

Today we spent the morning at PCH getting her peripheral vision checked. The testing was a piece of cake. She passed with flying colors and we’re grateful to check this off  our list….for the next 6 months at least.  

Her vision is a concern because of the size and location of the tumor….but so far so good🙏🏼  Another answered prayer. 

On another note, today is day 13 of the restart of her medicine. Last time it was on day nine when the horrendous side effects started. We’re thankful for our dermatologist who prescribed oral and topical steroids and great neighbors/friends who own a medspa and have been doing facials and red/blue light therapy weekly. Praying we can keep the rash under control and the next two years will be smooth sailing. 


 

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